For Our Caregivers

nurseSometimes I feel as though I’m trapped in a cage,
It fills me with anger, resentment and rage;
This cage it is made of my own flesh and bone,
It’s worse than any made of wood, steel or stone.

My limbs will all tremble as if I’m nervous or cold,
I no longer write, hands won’t do as they’re told;
My feet, they are heavy and make me walk slow,
My face a blank canvas, no expressions will show.

I want to still show you I love you and care,
But all you can see is a cold lonely stare.
You must always ask me to repeat what I’ve said;
My speech is much slower than what I’ve thought in my head.

I want to run to your arms and embrace,
But my feet won’t move I’m frozen in place;
You’re there to catch me if I stumble and fall;
You stand there beside me and give me your all.

You’ve seen me through the good and the bad,
You’ve been there to cheer me when I’ve felt blue and sad;
When my battle is over and it’s time to go,
Know you’ve always meant more than I could ever show.

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For Tiff on Mothers Day

I couldn’t sleep last night for you were on my mind
Now it’s time to get up and leave my dreams behind
I thought of a cold spring day and how scared I felt
I remember my joy later as beside you I knelt
I picked you up and carried you to the waiting car
With how good it felt to hold you I’d have carried you a thousand times as far
You were only ten years old when I came into your life
Now you’re grown, a mother and a wife
I’ll always remember that frightful day
When you thought you could run away
Like that day I want to hold you close and protect you from this worlds harms
And when you cold and scared carry you in my arms
I want to hold you and protect you from harm in any form
But now alone you must face the up and coming storm
As fate would have it though on this your special day
I find myself too distant and way too far away
I must tell myself you’re grown now and you will find your way
And must resign to from a distance tell you Happy Mother’s Day
May the day be merry and although stormy fill you with cheer
And may the fates bring us together to celebrate next year.

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Memories of Times Past

You lean forward, your hand on his neck and in his hair
you take a deep breath, the sharp fragrance of sweat is in the air,
you hear your heart beating it’s cadence in your ear
“let’s go” you say, words he has longed to hear
you feel his muscles ripple beneath you at the sound of go
he starts slowly but he’s eager to please you so
his pace grows faster, your two bodies move as one
and he knows this is your first time as soon as he’s begun
he tries to take it easy, you’re a young rider he can tell
and it’s the first time you’ve been on the back of “Rebel Yell”
at the top of the key now, it’s time to turn and burn
he knows he must be careful, still to please he does yearn
faster and faster your experience he’s for the time forgot
he reigns himself in, but knows he’s already broken trot
you’ve turned in the best time, the first time you’ve run this race
but the rules were broken so you must receive a second place
the race is over, you slide off to the ground
he turns to make sure you are safe and sound
as happens so often, a new love has begun
between a horse named “Rebel” and my little one.

For Liz, my little one

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Remember Then Not Now

Remember how we danced with style and with grace
Remember the smile that you always brought to my face
Remember my nature and my soft spoken ways
Remember our walks on the warm summer days
Remember my laughter and how badly I’d sing
Remember the comfort my embrace would bring
Remember the love we’ve share through the years
Remember my touch as away I wiped your tears
Remember how I’d run my hands through your hair
Remember the things for you I’d won at the fair
Remember these for me and the day we first met
For there’s a fog in my head that may make me forget
This illness slowly grows worse day by day
Changing and stealing who I once was away
My touch is no longer as steady and firm
It’s hard to do things that as a child I did learn
I’m locked inside as my body slowly shuts down
Even when happy my face wears a frown
Sometimes I see and hear what’s not there
Or in anger lash out at those for whom I do care
Please forgive me if I’m no longer the same
It may seem an excuse or the passing of blame
But this new person you see is not me
It’s something created by this lousy PD.

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From The Silence of My Tears

When my voice finally fails me;
The words “I Love You” no longer reach your ears.
Will you still see their meaning?
And hear their tones in the silence of my tears? tears
When my legs no longer hold me;
No longer can I walk by your side.
Will you still stand beside me?
Or push my chair with pride?
When my arms no longer hold you;
No more can you feel their warm embrace.
Will you still see their strength?
When you look upon my face?
When my hands stop working;
No longer combing through your hair.
Will you still feel their gentle touch?
In a caress which is no longer there?
When my face becomes frozen;
From my eyes all you see is a cold icy stare.
Will you still see beyond them?
And know the love and warmth that’s still there?
As my body slowly betrays me;
No longer allowing me to show the love I’ve shown for years.
Will you still feel the warmth?
And hear the love from the silence of my tears?

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